What is it?

Bladder exstrophy is characterized by an open, inside-out bladder where the inner surface is exposed to the amniotic fluid.

How common is it?

The incidence is rare, occurring 3.3 to 5 per 100,000 live births. Bladder extrophy is more common in males than females and in first-born children.  The recurrence risk in a family is about 1 in 100.

How is it managed?

During the pregnancy, there will be close ultrasound follow-up. Consultations before birth will be scheduled with the pediatric urology and neonatology to discuss prognosis and management after birth. Surgical goals include attaining normal kidney function, providing appropriate bladder capacity and function, and repair of external genitalia.

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